Phoenix Pop-Up is proud to be sponsoring the 4th Annual Cornhole for a Cure event, which supports the Angelman Syndrome Foundation (ASF). This event is an amazing opportunity to help raise awareness and funds for ASF, while also enjoying a fun day of cornhole games. All proceeds from this event go to ASF, and it is our hope that with the support of our community, we can make a difference in the lives of those affected by Angelman Syndrome.
What is Angelman Syndrome?
Angelman Syndrome is a rare genetic disorder that affects the nervous system, causing severe developmental delays and neurological problems. It is characterized by symptoms such as intellectual disability, speech impairment, seizures, and a happy demeanor with frequent laughter. This disorder is caused by a mutation or deletion in a specific gene on chromosome 15. While there is no cure for Angelman Syndrome, early intervention and therapies can help manage symptoms and improve the quality of life for individuals with the condition. By participating in events like Cornhole for a Cure, we can raise awareness and funds to support research and programs that benefit those affected by Angelman Syndrome.
The Angelman Syndrome Foundation
The Angelman Syndrome Foundation (ASF) is a non-profit organization dedicated to improving the lives of individuals with Angelman Syndrome and their families. Through research, support, and advocacy, ASF strives to find a cure for this rare genetic disorder and provide resources to those affected. The foundation funds critical research projects, hosts educational conferences, and offers support groups to help families navigate the challenges of Angelman Syndrome. They also work to raise awareness about the disorder and advocate for policy changes to improve the lives of those with Angelman Syndrome. The ASF plays a crucial role in supporting the Angelman Syndrome community, and their work is essential in driving progress and providing hope for a brighter future.
Cornhole for a Cure
Join us for the 4th Annual Cornhole for a Cure event, benefiting the Angelman Syndrome Foundation (ASF)! This fun-filled day of cornhole games is not only a chance to show off your tossing skills, but also an opportunity to make a difference in the lives of those affected by Angelman Syndrome. We’ll have prizes for the top three teams, so come dressed in your best pop up camper attire and get ready to have a blast while supporting a great cause. All proceeds go directly to ASF, helping to fund research, support programs, and ultimately find a cure for this rare genetic disorder. Together, we can make a difference!
Why Phoenix Pop-Up Supports This Event
Our deep personal connection to this cause stems from Quinn’s diagnosis with Angelman Syndrome at the age of 19 months. Quinn happens to be the granddaughter of one of our closest friends. This firsthand experience has given us a profound understanding of the challenges that this rare neurological disorder can bring to a family’s life. Upon Quinn’s diagnosis, her parents embarked on a challenging journey to find information and guidance on what to expect and how to cope with the condition. Their search revealed a stark scarcity of resources available to them and other families facing the challenges of raising children with Angelman Syndrome. This scarcity of support was a driving force behind their decision to establish “The Quinncess Squad” foundation in honor of their daughter, whose impact on their lives has been truly remarkable.
How to Get Involved in Supporting ASF
There are many ways to get involved in supporting the Angelman Syndrome Foundation (ASF) and their important work. Consider making a donation directly to the ASF. Every dollar counts and can help fund critical research, support programs, and resources for individuals and families affected by Angelman Syndrome. Another way to support ASF is by volunteering your time. They often have opportunities for volunteers at events, fundraisers, and conferences. Additionally, you can participate in awareness campaigns and spread the word about Angelman Syndrome on social media or through community events. Together, we can make a difference in the lives of those affected by Angelman Syndrome and support the vital work of the ASF.
